General
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Another round of injections for kiddo done. We spoiled the nurses as usual. And kiddo got her usual McDonalds cheeseburger and fries for lunch afterward. Now for dad to recover and find the normal routine. Do we have one of those. Today kiddo has her pod (day program) in the afternoon. I will have to…
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Christina woke up this morning in tears. She was hurting quite a bit. Interesting way to start a Saturday. It is what it is. And, Dad to the rescue. I did not do anything special. My duties as a dad in the morning are to get Christina her meds. We already had pain meds crushed…
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Due to the recent events and a trip with Christina to the ER, I have been finding difficulty relaxing. Talk about anxiety and focus trouble. Overall, I am pretty healthy. And, anxiety is only something that would come up the day/night before surgery. Maybe 48 hours for Christina’s major surgeries. I would say that counts…
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With the changes and updates that CaringBridge made. It was difficult for us to keep everyone updated. I’m worried about the future of CaringBridge and the stability of being able to update friends and family on Christina’s doctor visits and day-to-day progress. Some of the features we took advantage of are no longer available. With…
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Monday Christina had a doctor appointment. The drive is usually less than two hours. On the way there, traffic was heavier than usual. At the clinic I was informed there was a big accident not too far away which had caused delays for quite a bit of the morning. Lucky us. On the way home,…
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Christina had an appointment on Monday for a port flush. I did my training again and I successfully was able to flush her port. Unfortunately I did not get any drawback. The nurse training also tried. She also was not able to get any drawback; however, mentioned how well the port flushed. We then tried…
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Kiddo went to respite this past weekend. Yea for me, I went to see friends. It was a great weekend for me. Christina said she had fun, but missed me a lot. Sunday we had a video call. Christina was feeling sad missing dad. I suggested a video call and that started well. Christina started…
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Sunday, Christina and I went to the pharmacy to pick up her medications. One of them wasn’t ready and couldn’t be filled because the system showed that it was already paid for. We last picked up Feb 26th. And the system said we could not pick up until April 20th. The doctor did not send…
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The days seem to go by quickly. Easter already and snow predicted for the day after. It will be a typical Sunday for us. We went to grandpa’s for a holiday lunch today. There are a handful of clothes to take care of. And, some various items to put away. Christina can work on those.…
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No school for kiddo. I had ideas in my head of stuff we were going to do today. And, nope. Mother nature gave us some snow and there was paperwork that I did not get done over the weekend. And I still don’t know why it seems to take so long to make a grocery…
My Journey as Derek 